Monday, November 23, 2009

Grateful... Just Plain Grateful...


A year ago tomorrow will be the day that we took Ella home after a month-long stay at BCCH. The second of our three stays there with Ella...

A year ago tomorrow, I was fortunate to live again with my daughter at home for nearly two weeks... Though she was on oxygen therapy, she at least was home with me...

Throughout it all, through the last year, through the good days and the bad days, through the panic and the grief, I survived my ordeal because I felt loved and supported by my family: my mom, my dad, my sister and my brother, their spouses and my nephew and Goddaughter...

But beyond the love and support I received from my family is the other kind love and support I felt...

The love and support that comes from friends who without any expections in return sent my and Ella's way...

There were visits at BCCH, presents for Ella, an onion tart to feed her maman and other kinds of tasty goodies, calls to check in on us, Guinness smuggled in to our room on one of those days, messages and encouragements being sent on Facebook by mail and by email, donations made in Ella's memory, hundreds of cards and even ladybugs mementos... And through it all, love and faith carried Ella and I forward...

As I started my first day back at work in 15 months today, just like it was the case throughout Ella's illness and after her passing, I felt the love and support of my friends and family uplift me...

Since I decided I would attempt a return to work, there were more words of encouragements, emails, cheers and calls...
And as I headed to work today, more messages, cheers, calls, even flowers - pink of course and embraces came my way...

Since I came back from my first day's work tonight, there's been so much more love and support...

What else can I say but "thank you! / merci " to the hundreds of family members and friends, here in Vancouver, throughtout Canada, in the US and even overseas who have carried me, my grief, my broken heart and my angel forward on this journey back to life...

I am grateful... Just plain grateful... for your love and your support!

I could not be so strong without you having my back and complete confidence in me. And on behalf of Ella, my little angel who I know wants nothing more than for her maman to be happy again, I'll say it once more: "Merci! / Thank you!"

ELLA - Everyone Loves Little Angels

Friday, November 20, 2009

One step at a time...


On November 16, 2009 I should have been celebrating the beginning of my 5th year in Vancouver...

On November 16, 2009 I should have been able to tuck my daughter in, sing her gently to sleep and tell her how much I love her...

On November 16, 2009 I should have been able to hear my daughter say "Je t'aime" as she trailed into dreamland...

Instead, on November 16, 2009 I was faced with the gross realization that it had been 7 months and 20 days since my daughter passed away in my arms...

And that the next day, she'll have been an angel longer than she's been alive by my side...

What a way to start a week, ugh?

But as I reflect on that day and those thoughts more specifically, I know that as this 5th year in Vancouver starts there is a wind of change that lifts me up. A wind that is powered by two very small lungs... Two very healthy lungs that belong to one hell of an angel... Angel Ella, my baby girl!

She is the force that makes me get up and breathe...

She is the strength that allows me to feel, feel with every ounce of my body... something I was probably unable to do very well before she came into my life....

She heightens my sense of smell... She is the spring in my step... and the song in my heart... The pupil of my eyes...

She brings me to tears and always follows through with a smile or a good giggle...

Without Ella, I might have gone on to live my life as uneventfully as I did before...

Without Ella, I might have not paid it forward as much...

Without Ella, I might not have really known what it was like to live and to really love....

And as I go about my day, there is not one moment that she is not on my mind..

I can still sense Ella's touch on my cheeks as she reaches for my hair...

I can still smell her baby smell...

I can still see every roll of her body as she dances playfully...

I can still feel the slight tug of my hair as she twists it over and over around her little finger...

And who could forget about "le doigt d'honneur" - that middle finger that would pop up on one hand as the other would give you a piece sign... F you and peace all at once - what a diplomat she was :)

I so wish I could have it all back, just for one more minute... to hold her... to sing to her... to kiss her... to tell her I love her...

That won't be possible until I meet her in afterlife, I know... And so I've decided that I would continue to do what I've been doing in the last nearly eight months and which has been working quite well so far: live knowing that Ella is always with me...

I know... you probably think I've lost my marbles... But why not?

Ella got me back on a horse after 4 years away... Afterall, that was supposed to be "our" thing.

Ella got me to start yoga... Okay, that one is not as much her as what happened to her. I just needed to something to help ground me. But I know she gets me through it!

Ella showed me pink glittery gum boots I had to buy last week, a couple of days after I went looking for puddles to play in (and did play in) because if Ella had been alive, that's what we would do together...

As Ella would have been 16 months in 2 weeks, we would be at the stage of doing crafts together and now thanks to her, I have a desire to be more creative - something from deep inside me that I am rediscovering... All in her memory but also because if Ella was with me, that's what we would do...

But in her passing, Ella gave me a beautiful gift... The gift of our lives together and our story... and though it is indeed a tragic story, it is a story to which I would make no changes except to bring her back...

Today, I was able to share that story with a room full of colleagues as I prepare to return to work on Monday... Some I know very well and some I'd never met... And just like it has been the case since Ella's passing, she continues to touch people... Or is it that we, together as mother and daughter, touch people...

Someone told me yesterday that Ella and I have a very special gift to share....

Someone told me last month that at 35 his life is not nearly as full and fulfilling as Ella's life has been and that he is inspired by her and how she continues to motivate people to be better individuals...

As I embark on new adventures, Ella will be with me just as she was today when I faced my fears head on. It will not be an easy road... It will not be a steady road... But with a rock-solid little girl like Ella with me, there is absolutely no way I can get lost...

ELLA - Everyone Loves Little Angels

Wednesday, November 18, 2009

Memorial, Lanterns and Mischief

On November 8, 2009, a day after Ella's 15-month birthday was a very special event. The kind of event one would pray to never be invited to, if it even crossed their mind as they became a parent... As only a select few do get invited... or so it seemed to me in March…

But the reality of it is there are a lot more select “us" out there than one might think. Those "us" are bereaved parents... And the event was the Remembering Our Children event...

Organized by Canuck Place volunteers, the event consisted of a brief, joyful yet intense memorial service followed by a lantern-lit walk at Canuck Place. And here is how it played for me that night...

I showed up to the memorial service by myself.... my support friend not being able to join me after all that evening because life was simply taking over that day… (no criticism here, I understand how life goes, believe me!).

Fortunately, I thought, I had lined up another support friend. And there was still a chance that Ella's dad might show up; as he said he would come...

Well, as luck would have it, my second support friend was late and Ella's dad did not show up.... And because I sat in the 2nd row, toward the corner of the room - in front of the musicians - I could not easily be reached by my friend who showed up late... Silly, I know. And I won't make that mistake again...

So, as it happened, my friend Linda, chaplain at BCCH and my family for this special event sat in the back - and though I looked for her, I just could not see her... I was actually looking back right over her head, not realizing she was there... It was kind of funny actually, in retrospect, as I must have turned around 50 times, out of fear, desperation and reflex - all thrown into one....

Why fear and desperation? Because I was alone... Well, not really... but yeah, so I thought... in the moment…

While I was surrounded by fellow angel parents and their families, most of whom I know from the Canuck Place bereavement group, I was the only one unaccompanied… (remember I thought Linda was a no show)... And while a few of those parents and I spoke, exchanged stories, even laughed and one offered for me to sit with her and her husband before the ceremony started, I stayed where I was with an empty seat next to me, praying that Linda would show up...

But back to the fear and desperation...

It began a few minutes before the actual service started… Those who know me know how much music is an intrinsic part of my life… And it became clear that I was going to lose it as two guitarists started playing and singing a Beatles song …

But I tried my best not to lose it…

By the time the service started, tears were rolling off my cheeks like a cascade…
And as Eric, chaplain of Canuck Place, spoke I was already a complete mush…

I don’t know if it hit me so hard because Ella’s passing is still very raw… Or because I was by myself… Or because it was an opportunity to take in the enormity of it all… something I did not really do at Ella’s funeral because I was in “I must keep it together” mode that day…

All I know is that the service, as beautiful as it was and as serene as it was meant to be, hit me real hard… It must have done something similar to a few moms around me as we glanced at each others’ in understanding with tearful eyes...

There are 3 moments in the service that stand in my mind…

The first? A poem that Eric read, which upon hearing it, sent me even further into a spin… It’s called “We remember you” and though Eric adapted it to speak of many children whose families were present; it spoke to me and me alone at that moment as it had when it was read at Ella’s funeral on April 4, 2009 by, if I recall correctly, her Godfather Will…

The second is how a member of each family was offered the opportunity to light a candle during the ceremony and place it into a sandbox (which for me was the perfect metaphor – playful and exactly as children’s memories and souls should be) and we then mentioned their name out to the group… I got through it and that very candle is on my mantle now, surrounded by pictures of Ella’s and moulds of her little hands and feet…

The third came at the very end when Kathryn, a clinical counsellor, invited everyone to shine to the sky a little gadget that beans a ray of light as the group sang “Twinkle Twinkle Little Star”… And right there, I lost it again…

You see, Ella fell asleep every night at BCCH on that very music… And as if that was not enough, that same melody is that of a song I sang to her from the day I knew I was pregnant “Ah-vous-dirais-je Maman”, to soother her - and me… To the very day she died… Every single day… And even now…

By the time we’d sang the song and the service ended, I was physically and emotionally drained, having cried all the tears in my body…

And that’s when Ella first interfered!

Linda, my friend and my family was “revealed” to me… She gave me a huge hug and all the fears and despair were lifted… But that was only the beginning…

Linda and I now headed, as did all the families, back to Canuck Place. It had rained all day. The ground was wet, it was a dark night and the air was crisp… But that did not matter, as Canuck Place was festive…

Not festive as in decked out for Christmas… But festive in a very solemn, yet very bright and beautiful way… Oh, and the rained had stopped!

There seemed to be 100s of lanterns on the garden grounds…. I actually don’t know how many there were and did not dare to ask as the answer would have daunting – each lantern representing the soul of a child taken too soon to become an angel…

The staff of Canuck Place welcomed us, offered us some hot cider (a cheerful treat on such a cool Fall evening) and then sent us to walk around the gardens to find the lantern which belonged to our child…

As Linda and I started exploring, looking at every single lantern’s name to find Ella’s, we quickly commented how amazingly beautiful it all was, and yet how tragic it was… to see sooooo many lanterns – each for a child who’d died…

As we diligently went about checking each lantern, I commented on the fact that in true Ella style, she’ll make sure that we find her last… And as we came across one lantern which had run out of candle and we got that fixed, Linda thought to herself, something wonky will happen… And that feeling intensified, I later found out, as we came closer to where we’d started…

After a very thorough tour around the Canuck Place gardens, my heart started to sink… I had not found Ella’s lantern…

So, we made our way to the volunteer who knew where each lantern was placed and asked where Ella’s was…

Can you believe that my darling, sweet girl’s lantern was actually at the starting/ending point of our tour – right where Linda and I actually started looking at names and where I told Linda that we would find Ella on the last lantern??? But again, in true Ella style, there was a twist…

A twist I attribute to my mischievous angel… J

Ella’s lantern was not lit… And as we both came to the realization of it - Linda and I just cracked up giggling because we just knew that Ella had been by our side all along, waiting anxiously for us to get to the end / the start and laughing as she got passed us to go “Look Maman - Pffft, pffft, pffft” to blow out the candle with her now healthy lungs!!!

We continued to giggle after lighting the candle as we walked to the new waterfall feature in the gardens to place a memorial rock in the water on which is inscribed “Ella Dupont Bedassie, Love You, Maman”. Not every inspired, I know… I guess my brain was fried from all the tears and giggles!

And then Linda and I both headed home, all the while still laughing and amazed by the turn of events that night…

As I returned to Canuck Place last evening to attend my bereavement group, I went back to the waterfall… And right there, just as I’d left it over a week ago, under the light that beams on it so intently is Ella’s rock! And it is surrounded by all the rocks angel parents placed in memory of their darling child…. just like I know those little angels surround each other up there in Heaven and cheer us on as we attempt to honour them as best as we can while they continue to play tricks on us to keep us on our toes…

ELLA – Everyone Loves Little Angels

Tuesday, November 17, 2009

7 months and 20 days...


7 months and 20 days....
Not what you’d normally call…
A life time...
But it is…
It is…
Ella's life time...

7 months and 20 days...
2 months of which were "healthy"...
And well, the rest you now figure out...

And yet, Ella was "healthy"!
As healthy as you can be…
When your lungs are poisoning you...Definitely so ill inside...
But remarkably so healthy-looking outside...
And in her mind…

Although Ella had end-stage emphysema…
Before she was even 3 months old...
You could definitely not tell...

Ella has a sparkle in her eye…
Ella has a grin on her face…
Ella has an intent way of looking right through you…
And captures your heart…

Feet up…
Hands waiving…
Ella dances to the music that plays around her…
And to the songs that drum in her head…

With King Louie…
With Pinky…
With Mula Visa…
Grand-Maman…
And Grandma…
With Maman..,
And Daddy…
Always with Ralph looking out for her…

Mischievously playful…
Peacefully restful…
From frail to plump…
Holding on to Daddy’s finger…
Smiling for Maman…
Ella grew…

And as Ella grew…
Her lungs got worse…
But you could hardly tell…

From the day she was born…
To the day she died…
Ella lived a full life…
The way Ella intended to…

Announcing herself as a surprise…
Keeping me on my toes and off my feet…
Peeking her head ahead of time…
Taking Maman for a ride…
Ella lived…

Ella went to a pub 18 years before it was even legal for her to do so...
Ella was on Facebook when kids 10 years her senior are not allowed...
Ella travelled across the country to meet her families…
Ella went to work… (Maman’s workplace that it…)

Ella was a die-hard football fan (go 49ers, go Dolphins!)…
Ella was a Canucks lover…
And Ella roared fiercely for the Lions…

Ella attended an LGBT travel show…
Where she was the star…
With the Dallas Cowboys (the shirtless kind!)…

Ella was a supermodel in Montreal…
Posing for an indoor photo shoot complete with lighting, talent and 3 photographers…

Ella was a supermodel in Vancouver…
Subjected to her mom’s kid Kodak reflexes…
And immortalized by friends, nurses and Jane from Now I Lay Me Down to Sleep…

Ella went to the beach…
And Ella ate out at restaurants…
Ella was touched by the rain…
And thanks to Michele, one of her nurses, also by snow…

Ella went to birthday parties…
And collected stuffies…
Ella loved watching Stewie…

Ella breastfed…
And she held her own bottle…
Ella grinned as she lay on her sleeping Daddy’s stomach…
And Ella played rhymes with her Grand-Maman…

Ella had a first love, beside her dad: nurse Ryan…
And Ella had a beau (sweet Gavin)…
A best girl, Emma, who visited her so often…
And Ella learned to count…

Ella celebrated Halloween…
And Thanksgiving…
Christmas… and New Year…
Hawaiian Day…
And Daddy’s birthday…
But was sadly two days short of wishing Maman Happy Birthday…
Although she’d learned to say "Maman" – a precious gift that came as she was about to leave.

Ella was baptized…
And Ella was proclaimed a Saint…
By the father who presided at her funerals…

Ella felt the wind…
And the love of a thousand friends…
From far and wide…
Who 7 months and 20 days ago…
Had their hearts ripped out…
When Ella became an Angel…

And as I started the day…
The 7 month and 21st day....
The day when my daughter has been an angel longer than she’d been by my side…
I remembered the words of a very wise nurse…
Who believes like I do…
That we are all put here for a reason…
And that we all follow our own path…

Ella was and is beautiful…
As she continues to inspire me…
My family…
My friends…
No matter how long our journeys are…

7 months and 20 days is a life time…
7 months and 20 days is Ella’s life time…
As long as I live and honour her…
Ella’s life time will go on…

ELLA - Everyone Loves Little Angels

Sunday, November 1, 2009

Blessings From High Above

I started my day today feeling a bit lazy. Last night was Halloween, and instead of being with my almost 15-month-to-be daughter, I spent the evening with friends. Really good friends. Friends who are good for your soul. But not really by choice (and please don't think I was unhappy to be there, because I wasn't) but rather because it was a necessity. A way for me to cope with the reality of it all... The reality of my daughter's passing and how any kind of special day/holiday sends me for a spin...

Unlike yesterday, my day today started with a huge ray of sunshine in my heart. Yesterday, well, that was another story... In other words, a very tough one...
Even though we were blessed with an absolute beautiful, warm and sunny autumn day - the kind of day that makes you long for the East - my heart was not in it and I had to force myself to go through the motion and get through it.

I've become an expert by now at faking it. Faking a celebration... Faking a smile... Faking to look remotely "normal" and happy. And then, I decided to blog about Ella. I recapped a text I wrote for Ella's Supercommunity for BCCH - about Ella's first crush, Ryan. And as I copied and pasted the old text, I decided to re-read it and make minor corrections to it. And then, well I added more meat to it, turning it into a thank you to nursing staff who took such wonderful care of my little Ella.

And that's when the shadows in my heart turned into a ray of sunshine. Ella was showing me a way to overturn those feeling of ache and make them positive again. Every single time I've gone down with major cases of the blues, it has been around special days and I've learned to cope by taking care of my BCCH family. Why would this day be any different than the other holidays, really?

So I went shopping and then I started to bake! Gutted a pumpkin and made pumpkin soup. And then baked some chocolate pumpkin cupcakes. All throughout the afternoon, I was driven by one goal - bring a little bit of Halloween to the staff at BCCH on 3M where Ella spent her first and only Halloween, and to the parents of kiddies on the ward. And when I was done, I remembered those parents I'd met at Thanksgiving and thought "I still have a pumpkin, and everything left to do more cakes, so I need to continue". And I did :)
By 6 pm, I was walking in to BCCH, bags of goodies in hands. There was cakes for the staff of 3M and ICU, some candies for the 3M staff and soup + cupcakes for the parents of both 3M and ICU. As I laid the tables in each area with food and the appropriate plastic settings, I was fortunate to meet a few parents and talk to the staff, all very grateful for the gesture. And just as quickly as I came in, I was out the door! Not without thoughts for little ones I knew back when Ella was in the hospital: T who was going to be dressed as Elmo (costume made by nursing staff for him), F who hopefully was dressed as a very cute little lady bug (a gift from Ella to her on the day she met her new family). And then there was a special thought for another little one who I did not meet but was wishing so well: a little boy or girl I am not sure, but one who was to receive the Dalmatian outfit I left on 3M earlier this week for a family to enjoy.

And so, with that afternoon of "cooking therapy" I was energized for a lovely evening. I made it to the party in time to see the darling little Emma, Ella's best girlfriend, all dressed up in the ladybug outfit I got for her. And although Emma was getting grumpier and grumpier because she was so tired, I got a huge hug and a "Love you" that went straight to my heart! And so started my evening among friends... Friends that are good for your soul... Friends that care for you... Friends that love you for who you are...

That feeling of being loved and content carried on to morning. Yes, I was lazy but I could be since we had an extra hour to spare. But noooooo, no late morning for me because the call of horses was being heard!

I made my way to the barn to witness the costumed classes of the schooling show I was participating in. It has been 20+ years since I've shown, in a real show or a school one. And I was energized, but terrified... Wearing my pink proudly for Ella (in a school show, you don't need the mandatory outfit), I warmed up and it felt good. And as I got on course, my fear intensified.... I went through the motion of the first course and just like I had done when I was 8, I forgot to breathe... And by the second course, it had all come back to me... How good it feels to be in the saddle again... How sweet it is to have a 1,000 pound animal share in on your partnership... How much I loved showing... How good it is to breathe... And yes, I did and I still do. And I will tomorrow too!

Today, as I was showing, I had Ella in my heart, in my pocket (her picture), on my neck (the heart pendant we share) and I had Chelsea to help me through it. Chelsea, a wonderful old (she is 27) and safe Arabian mare who despite her very grumpy moods melts your heart when she snuggles you... After snatching a ribbon, a 3rd no less and regardless of a big mistake on part, I decided it was time to say thank you. So I headed to see my girl. And as I sat by her side, under a full sun and told her about the great day I just had, I knew she already knew it, that she'd seen me through it. But I just had to tell her and say thank you. And as I started to sing to her, my voice gave out, and my tears came in. Ella and I were supposed to enjoy horses together. It was supposed to be "our" thing. But when I got in to my car, I realized that it already was. Right there in my car as I sat down was a ladybug on my sleeve. She made her way to my hair (Ella always, always played with my hair when I rocked her) and after I tried to capture a photo of it, I stepped outside,, She just stayed there for a second more before flying into the wind...

And that my friends are the blessings from high above. The blessings that Ella gives me every second of every minute of every hour of every day...