Saturday, March 20, 2010

Paying It Forward


For nearly a year now...
I've heard often...
How strong I am...
How generous I am...

For nearly a year now...
I've been honouring my baby Ella's life...
By paying it forward...
In every way I imagine...
As best as I can...

But before I knew how to do it...
There were two moms before me...
Who showed me the way...
Who taught me how...

The first, I've never met...
But I heard...
She lost a child a few years ago...
A child who like Ella...
Was an ICU patient...

That mom who does not know me...
Or knew of Ella...
Carefully put together...
Christmas gifts...
For moms in ICU...
Back in 2008...

A red bag...
Some soft tissues...
A red heart ornament...
A notebook, and a pen...

With it came a note...
Telling me how 3 years before...
She was herself in ICU...
With her son...

And that through the Holidays...
Her thoughts would with be me...
With my child...
With my family...

The heart hung by Ella's bed...
In the notebook...
I could not bring myself to write...
Except for two occasions...
One of which was to note...
"They think you're going to make it"...

Fast forward three months...
And I meet a mom...
In ICU with her daughter...
Whose name also happens to start with an E...
Just like my baby's...

Ella was in bed 18.
And E, her dad and her mother R...
Were our neighbours...

And on the morning of March 19, 2009...
As my girl struggled so seriously just to breathe...
As I nearly lost my daughter...
R and her husband were one of the few people...
Who witnessed everything...
Who saw how close a call it was...
For Ella that day...

Not because they wanted to...
But just because that's how things are...
When your child lies 3 feet away from another...
In an ICU with very few actual rooms...

The following morning...
As she came in to spend the day with her daughter...
R walked over to me...
And handed me a gift...

A coin...
A very special coin...
With a picture of an angel in the front...
And three words inscribed on the back...

HOPE...
FAITH...
BELIEVE...

And as she gave me this gift...
Her words were simple...

When I am upset...
When I am scared...
When I am losing hope...
I must channel all my negative energy...
Into this coin...

And then...
I must focus on charging myself up...
With positive thoughts...
With love...
With strength...
And with faith...
For Ella...
To feel it all through me...

This amazing gift...
R gave me...
Has gotten me through...
Ella's last 8 days...

It has gotten me through...
The dark days...
The rotten days...
The ongoing hurtful days...

But it also has gotten me through...
The sunnier days...
The lovelier days...

It continues to go with me...
Everywhere I venture...
It continues to show me...
That very simple actions...
Sometimes make a world of difference...
In someone's day...

In someone's life...

And so my strength...
Is not entirely my own...
Nor is my generosity...

Both are inspired...
By moms I cherish in my heart...
By moms who just like I've learned how to do...
Simply...
Pay it forward...

ELLA - Everyone Loves Little Angels

Friday, March 19, 2010

Breathe


Breathe....
Simple...
Right?...

Definitely for you...
Maybe for me...
But absolutely...
Not simple...
For Ella...

On March 19, 2009...
Just as it happened a few times before...
Ella started to struggle to breathe...

How can this be...
When your child...
Is hooked on a respirator...
24/7?...

But this pattern...
Was too familiar to me...
So I saw it happen...
Right before my eyes...

Her oxygen level dipped...
And came back up...
And it dipped again...

Within seconds...
Her nurse was at bedside...
As Ella became agitated...
Her eyes telling me...
Something was very wrong...

It was clear...
This was not good...
As she dipped...
Harder...

By the time I realized...
What was truly happening...
Dr. Kent was with the RT...
Trying to move air...
In my daughter's chest...

None was moving....
And I started to panic...
While the RT tried her best...
But no air was moving...

I remember a demand...
Whether it was actually a command or a yell...
I can't recall...
But Heather, a senior RT, suddendly appeared...
To second Dr. Kent...

Colour had changed...
Hands were about to perform...
Extraordinary measures...
As I pleaded to Dr. Kent...
"What can i do?"...

"You've got to give us...
space to work"...

And I see myself...
Like it was yesterday...
Take my touch away from Ella...
Bring my hands to my mouth in horror...
And back a few feet from my Ella...
To the foot of the bed...
So that the team of experts...
Could make air move...
Into her little lungs...

I stood there...
For what seemed like an eternity...
But really it happened so fast...

Lungs fnally started to let air in...
As drugs were administered to calm Ella...

On March 19, 2009...
Dr. Kent and Heather...
Saved my daughter's life...

On March 19, 2009...
I knew that Ella's time was near...

On March 19, 2009...
A handful of people were witness...
To my ordeal...

And of my daughter's struggle...
To perform what should be...
The simplest of acts...
One we all take for granted...

On March 19, 2009...
Ella gave me the biggest sign...
That I needed to get ready...
And prepare her...
And me...
For what was to come...

On March 19, 2009...
My daughter showed her maman...
What a will of steel she has...
And yet how fragile her little body was...

On March 19, 2009...
I almost lost you again...
But on March 19, 2009...
You went on to give me a gift...

The gift of 8 more days...
To love you...
Cuddle you...
Play with you...
Touch you...
Kiss you...
Feel you...
Know you...

On March 19, 2009...
You sucked your little finger...
You counted your friends...
You danced...
You smiled for maman...
You touched my cheeks...
You continued to twirl my hair...

On March 19, 2009...
You gave me the bestest of gifts...

On March 19, 2009...
You breathed...
You lived...

Je t'aime mon ange!
Maman

ELLA - Everyone Loves Little Angels

Monday, March 1, 2010

Countdown Has Begun


It's official, the coundown has begun...
And I can't do anything about it...
Not, one single thing...

Time won't stop...
No matter how clever I think...
I can be at willing it...

The countdown was always there...
Ticking away...

But with the shift from Feb. 28...
To March 1...
It has stuck me...
As the most cruel...

With all of us now in March...
I can't escape it...

Every day is a stronger reminder...
Than the next...
On what's to come on March 27...

Every day is full of memories...
Some that were hopeful...
And then the reality of the events...
Hits me right in the face...

And as if that was not enough...
It is a constant reminder...
Of what I wanted to do...
But could not do...
To honour Ella yet...

A long list await...
But life gets in the way...

Life for now equates with work...
The place where although I know it helps...
I can't focus on my daughter as much as I'd like...

The place where I started having panick attacks again...
The place where I find myself in tears, more and more daily...
Not because someone is mean...
Not because of the work load...
But simply because the countdown is on...

The place, like the rest of the world, where everyone has a life...
A real life..
Although maybe not always happy...
A life without the black cloud...

A place that I must be at...
Because otherwise I won't be able...
To keep my home, Ella's home...

Rare Disease Day went un-noticed...
The Olympics celebrations nearly had the best of me...
Not because I was out partying and enjoying it...
But rather because I cannot celebrate life...
The way that it would have been celebrated...
If Ella was with me physically still...

The countdown has begun...
And I can't do anything about it...

ELLA - Everyone Loves Little Angels